Over the years both the College and the ME Association have been receiving a number of enquiries from patients living with ME/CFS bemoaning the lack of information on how anaesthesia might affect their condition, but also seeking reassurances that their needs in the perioperative period would be met with understanding and compassion. 

The College acknowledged that there was not much in the way of information to support these patients nor the anaesthetists looking after them, and agreed that this gap needed to be addressed given the relatively high occurrence of the condition in the UK. Current reports estimate that there are 250,000 people living with ME/CFS at any one time in the UK, but this is likely to be a gross underestimate as traditionally it is poorly diagnosed, and many Long COVID patients fulfil ME/CFS diagnostic criteria. The most recent ONS survey reports 1.7 million people in the UK living with Long COVID.

This was new territory for the College, as producing information without a comprehensive body of evidence for such a poorly understood medical condition was something we had never done before.